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Tag Archives: tube feeding
About Jenn
While pursuing my literary and professional goals, I managed a severe form of gastroparesis (paralysis of the stomach) for six years, later complicated by full GI failure and a nonspecific autonomic failure of unknown etiology. In August of 2010, I … Continue reading
Posted in Information & Education
Tagged central lines, gastroparesis, IV nutrition, PICC lines, Port-a-cath, sepsis, TPN, tube feeding
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Can It ALL Be Coincidence?
This week a very friendly and gracious reader commented on my blog, and made me think (again) that maybe there’s a single overarching systemic problem that explains the multiple disorders and syndromes and symptoms I have. Greg and I have … Continue reading
Posted in Health Updates, Information & Education, Journal
Tagged depression, Fibromyalgia Syndrome, gastroparesis, hospitalization, idiopathic tachycardia, memory lapses, migraine headaches, narcotic resistance, nausea, osteoporosis, Port-a-cath, severe osteoporosis, TPN, tube feeding, Upper Airway Resistance Syndrome
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The Vacation
I am on vacation. For an entire week, my husband and I are away from home, away from work (well, mostly—if there’s Wi-fi available, we work a little bit), touring the beautiful Olympic Peninsula. As Seattleites, the Olympics are pretty … Continue reading
Posted in Health Updates, Journal, Narratives, Reflections
Tagged central lines, doctors, gastroparesis, j-tube, jejunostomy, nausea, PICC lines, Port-a-cath, TPN, Traveling with TPN, tube feeding, vacation on TPN, vomiting
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Tubes, Spouts, and Jenn’s Physician-Assisted Piercings
Implanted port (Portacath): This is a completely subcutaneous port which, when accessed by a (very large!) needle, serves as my feeding line for TPN. After numerous failed PICC lines, we decided to try a more long-term approach with this kind … Continue reading
Posted in Health Updates, Information & Education
Tagged central line, g-tube, gastrostomy, j-tube, jejunostomy, PEG, Port-a-cath, TPN, tube feeding
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The Grand Canyon, the Colorado River, TPN, and Me
An adventure worth some risks… but unforgettable, indescribable, spiritual, and altogether FUN experience! Continue reading
Posted in Journal, Narratives, Reflections
Tagged g-tube, gastroparesis, gastrostomy, j-tube, jejunostomy, nausea, perseverance, TPN, tube feeding, vomiting
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Update, Part II
We did our Grand Canyon trip (see the “Grand Canyon” post for notes on that phenomenal trip–photos are here), came home, and went back to life as usual (only with TPN running at night, rather than tube feeding). We tried … Continue reading
Posted in Health Updates, Information & Education
Tagged g-tube, gastric neurostimulator, gastroparesis, gastrostomy, j-tube, jejunostomy, nausea, perseverance, TPN, tube feeding
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Abs of Silicone!
So here’s my new tummy — tubes, implants, and all! Doesn’t resemble much of anything, really, but it’s the best tummy I’ve had in two years!
Posted in Health Updates, Information & Education
Tagged g-tube, gastric neurostimulator, gastroparesis, gastrostomy, j-tube, jejunostomy, nausea, TPN, tube feeding
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VINDICATION
vin·di·ca·tion (vin-di-’KAY-shun): The defense, such as evidence or argument, that serves to justify a claim or deed. I have been vindicated. Last Monday morning (February 27th) I had a dreaded appointment with my somewhat schizophrenic (or at least brutally unpredictable) … Continue reading
Status Post J-Tube!
OK, so (as per my routine) I turned the one-nighter in the hospital into a two-nighter, but at least I have my j-tube! So far, I am enjoying tube feeding (yes, you read that right, enjoying). It is monumentally easier, … Continue reading
Posted in Health Updates, Journal, Narratives
Tagged gastroparesis, j-tube, jejunostomy, poetry, TPN, tube feeding, vomiting
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Next Chapter: Tube Feeding
Well, we’re on the schedule for surgery: Tuesday, February 7, I will have a “feeding jejunostomy” (j-tube) placed. It’s only a one-night hospital stay, and all the learning about this new mode will take place at home. It can’t be … Continue reading
Posted in Health Updates, Information & Education, Journal, Narratives
Tagged gastroparesis, j-tube, jejunostomy, poetry, tube feeding
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