Tag Archives: tube feeding

About Jenn

While pursuing my literary and professional goals, I managed a severe form of gastroparesis (paralysis of the stomach) for six years, later complicated by full GI failure and a nonspecific autonomic failure of unknown etiology. In August of 2010, I … Continue reading

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Can It ALL Be Coincidence?

This week a very friendly and gracious reader commented on my blog, and made me think (again) that maybe there’s a single overarching systemic problem that explains the multiple disorders and syndromes and symptoms I have. Greg and I have … Continue reading

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The Vacation

I am on vacation. For an entire week, my husband and I are away from home, away from work (well, mostly—if there’s Wi-fi available, we work a little bit), touring the beautiful Olympic Peninsula. As Seattleites, the Olympics are pretty … Continue reading

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Tubes, Spouts, and Jenn’s Physician-Assisted Piercings

Implanted port (Portacath): This is a completely subcutaneous port which, when accessed by a (very large!) needle, serves as my feeding line for TPN. After numerous failed PICC lines, we decided to try a more long-term approach with this kind … Continue reading

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The Grand Canyon, the Colorado River, TPN, and Me

An adventure worth some risks… but unforgettable, indescribable, spiritual, and altogether FUN experience! Continue reading

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Update, Part II

We did our Grand Canyon trip (see the “Grand Canyon” post for notes on that phenomenal trip–photos are here), came home, and went back to life as usual (only with TPN running at night, rather than tube feeding). We tried … Continue reading

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Abs of Silicone!

So here’s my new tummy — tubes, implants, and all! Doesn’t resemble much of anything, really, but it’s the best tummy I’ve had in two years!

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VINDICATION

vin·di·ca·tion (vin-di-’KAY-shun): The defense, such as evidence or argument, that serves to justify a claim or deed. I have been vindicated. Last Monday morning (February 27th) I had a dreaded appointment with my somewhat schizophrenic (or at least brutally unpredictable) … Continue reading

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Status Post J-Tube!

OK, so (as per my routine) I turned the one-nighter in the hospital into a two-nighter, but at least I have my j-tube! So far, I am enjoying tube feeding (yes, you read that right, enjoying). It is monumentally easier, … Continue reading

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Next Chapter: Tube Feeding

Well, we’re on the schedule for surgery: Tuesday, February 7, I will have a “feeding jejunostomy” (j-tube) placed. It’s only a one-night hospital stay, and all the learning about this new mode will take place at home. It can’t be … Continue reading

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