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Tag Archives: sepsis
Just Tell Me Where I’m Going Before I Tell You Where to Go
Living with chronic illness is kind of like living in a hospital gown: it’s not made for comfort, it’s conspicuous, and there’s always a discomfiting breeze in regions not accustomed to regular air circulation. Continue reading
Posted in Health Updates, Journal, Narratives
Tagged antibiotics, hospital, infections, sepsis
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About Jenn
While pursuing my literary and professional goals, I managed a severe form of gastroparesis (paralysis of the stomach) for six years, later complicated by full GI failure and a nonspecific autonomic failure of unknown etiology. In August of 2010, I … Continue reading
Posted in Information & Education
Tagged central lines, gastroparesis, IV nutrition, PICC lines, Port-a-cath, sepsis, TPN, tube feeding
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A Little Less Of Me
Two weeks ago, on August 3rd, I finally had my rebellious stomach removed (total gastrectomy). While the recovery is harder and more frustrating and discouraging than I had expected (hoped), I’m finally beginning to feel like myself again, slowly but … Continue reading
New Beginnings: A Lullaby
There’s something to be said for having a chance to rebuild oneself. In mid-November of 2007, I began having significant troubles with sleep–I’d come home from work, sleep, wake up to get ready for bed, sleep, and have difficulty staying … Continue reading
Farewell
If the [physician] possess negative sagacity, and a nameless something more,—let us call it intuition; if he show no intrusive egotism, nor disagreeably prominent characteristics of his own; if he have the power, which must be born within him, to … Continue reading
Posted in Health Updates, Journal, Narratives, Reflections
Tagged central lines, doctors, g-tube, gastroparesis, gastrostomy, hospitalization, j-tube, jejunostomy, Port-a-cath, sepsis, TPN
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Birthdays and Other Milestones
This past Tuesday, I turned 35. 35 years old. To celebrate a new level of maturity, I got a significant haircut and style change—from a basic, boring bob to a short-cropped, tousled, highly textured look. The funny thing is that … Continue reading
Posted in Journal, Narratives, Reflections
Tagged birthdays, central lines, g-tube, gastric neurostimulator, gastroparesis, gastrostomy, j-tube, jejunostomy, perseverance, PICC lines, Port-a-cath, sepsis, TPN, Traveling with TPN
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Seeing Eye-to-ID
The following was an extremely positive exchange I had with one of the infectious disease (ID) specialist physicians on my “team” at the medical center where I am a patient. He has followed me over the past two years, though … Continue reading
Posted in Information & Education, Journal, Narratives
Tagged central lines, doctors, gastroparesis, letter, PICC lines, Port-a-cath, risks, sepsis, TPN
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Message to the Doctors
December 4, 2006 Dear Medical Staff, I don’t know what to say anymore. I don’t know how to respond when you say things like, “well, we saw this coming,” or ask, “do you have an explanation for this one?” Really, … Continue reading
Posted in Journal, Reflections
Tagged central lines, doctors, gastroparesis, hospitalization, PICC lines, Port-a-cath, risks, sepsis, TPN
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